New stuff!!!
The last couple days have been busy, busy, busy!
Monday, we went to Peoria to meet with a new doctor......a new Pulmonary doctor to replace the crazy one that we currently have. He came highly recommended by a friend. She said that he was very thourough.....that is a euphamism for "pack a lunch". LOL! However, he IS very thourough. He is now our new pulmonologist! Yeah! I would much rather have a pulmo at the same hospital that our cardilogist is at.
Unfortunately, I think I got a case of food poisoning. I have NOT been that sick in a L-O-N-G time. Not sure what that was, but when I got up at 4:30 Tuesday I felt like a new person. Whew!
Good thing because we were off to Chicago (LaRabida) for physical therapy today. We LOVE our PT up there! She is .....lively. Christopher grumped the whole time, but I think it was more because he wasn't running the show. LOL! Mike, our friendly DME guy was there to take measurements for Christopher's new stander! He measures right in between two sizes, so we are going to have to figure out if we can swing the larger one to make it last longer. Can't wait to get this!
We also found out that at his next appointment, Christopher will get to try out a tryke! Apparently, there is a couple who modifies Radio Flyer Trykes for free. Christopher is on the list to get one of the trykes. Yeah! All falling in to place to get him outside more next year!
That is about it for now.
Hugs!
Steph
Monday, we went to Peoria to meet with a new doctor......a new Pulmonary doctor to replace the crazy one that we currently have. He came highly recommended by a friend. She said that he was very thourough.....that is a euphamism for "pack a lunch". LOL! However, he IS very thourough. He is now our new pulmonologist! Yeah! I would much rather have a pulmo at the same hospital that our cardilogist is at.
Unfortunately, I think I got a case of food poisoning. I have NOT been that sick in a L-O-N-G time. Not sure what that was, but when I got up at 4:30 Tuesday I felt like a new person. Whew!
Good thing because we were off to Chicago (LaRabida) for physical therapy today. We LOVE our PT up there! She is .....lively. Christopher grumped the whole time, but I think it was more because he wasn't running the show. LOL! Mike, our friendly DME guy was there to take measurements for Christopher's new stander! He measures right in between two sizes, so we are going to have to figure out if we can swing the larger one to make it last longer. Can't wait to get this!
Christopher did really well. We were there for 2 hours. He is now bending his knees at a 90 degree angle and putting weight on them. We have found that he has one leg longer than the other. He is also showing signs of scoliosis. For some reason, he twists to the left (from the waist up) when he sits or stands. We don't know if this is some sort of stem thing or if he is compensating for something. We have lots of work to do. He is going to be getting measured for AFO's to help distribute weight evenly on his feet. He will also be getting arch support and a lift in one shoe.
We also found out that at his next appointment, Christopher will get to try out a tryke! Apparently, there is a couple who modifies Radio Flyer Trykes for free. Christopher is on the list to get one of the trykes. Yeah! All falling in to place to get him outside more next year!
That is about it for now.
Hugs!
Steph
posted by Stephanie at
1:15 AM
1 Comments:
Hi, Stephanie!
Thanks so much for stopping by my blog and leaving a comment; it's great to "meet" you! I really appreciate your input about Josiah's situation with that boy in his violin lesson; thanks!
Blessings to you as you care so faithfully for Christopher!
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